An unheard of diagnosis (for me anyway)

Long QT Syndrome. Yeah, I have never heard of that until the doctors diagnosed me as having it while I was in the hospital.

What is it? Well the best way that was explained to me is, “your heart is like a house, for you the structure is good. But like a house  with electrical problems some people can have some electrical shorts. Your heart has an electrical short and it cuts out from time to time. If your heart can’t fix this “short” then there is a possibility of it stopping.”

But really it has to do with your rhythms.  There is an interval called the “QT”, and people who have the syndrome can have a longer  QT interval.

Really reading about this made me think, of all the times I would just be sitting, in a classroom or while I painted, nothing super active or even stressful and I could feel my heart “flutter” and race like I had been running. I told my mom when I was a kid, sure she thought I was making it up (I was a very imaginative kid), and who would think their pretty healthy kid would have heart issues?

I think before I had my son, I finally went to a doctor and explained to them what was going on. I was getting tried of the “fluttering” feelings and the fainting feelings. They did a thyroid test and some other blood work. Basically after all of this I was told it was most likely in my head. Of course I was upset, and was like forget it, it really wasn’t worth it to push.

Lesson learned, we all know ourselves and most of us are in tune with our bodies. If something isn’t feeling right, you need to keep looking. I often wonder if I had pushed and gotten an EKG, would they have found the Long QT syndrome, I could have bypassed the whole sudden cardiac arrest.

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